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Multiple Health Care Needs

American Academy of Pediatrics, Managed Care and Children With Special Health Care Needs: Creating a Medical Home – Children with special health care needs have a broad range of primary, specialized and related service requirements. Recognizing these needs, managed care systems face a critical issue: can they control utilization and still offer the full range of appropriate services?

American College of Emergency Physicians – Children with chronic medical conditions are the most rapidly growing group of children under age 18 coming to emergency departments. These children present unique challenges to emergency physicians and to other health care providers.

The Association of Maternal and Child Health Programs – The Association of Maternal and Child Health Programs is the national organization representing state public health leaders and other interested individuals and organizations working to improve the health and well being of women, children, youth and families, including those with special health care needs.

The Center for Children with Special Needs – The Center for Children with Special Needs promotes the health and well-being of children with special health care needs and their families.

Center for Health Services Financing and Managed Care – The Health Resources and Services Administration established the Center for Managed Care in May 1996. The Center is responsible for assuring that HRSA's programs and the underserved and vulnerable populations they serve are active and knowledgeable participants in managed care systems. The Center also seeks to assure that an appropriately trained primary care workforce is available to serve the managed care needs of these populations.

Circle of Inclusion/Children with Health Care Needs – Links from the Circle of Inclusion project related to health care needs.

Epilepsy Foundation of Virginia – The Epilepsy Foundation of Virginia was established to promote awareness about epilepsy and provide assistance to those with the disorder. On an annual basis, it helps around 2,000 consumers with epilepsy and their families and friends. The annual surveys of consumers' main concerns show that the top priority is invariably to promote awareness. Consumers alert the foundation about inappropriate reactions when someone has a seizure.

Family Village – The Family Village is a global community that integrates information, resources and communication opportunities on the Internet for persons with cognitive and other disabilities, for their families and for those that provide them services and support.

Family Voices – Many groups focus on particular childhood illnesses or populations. Others represent children and adults, or concentrate on specific reform proposals. Family Voices is a national organization that speaks for all children with special health needs.

Health Systems Research Inc./Children with Special Health Care Needs – HSR conducts comprehensive population-based needs assessments of CSHCN and their families; designs alternative mechanisms for integrating service delivery and financing mechanisms; develops indicators for measuring quality of services delivered; and assists state agencies in developing and implementing a systems-based approach.

Institute for Child Health Policy, Center on Financing for Children with Special Health Care Needs – The Center on Financing for Children with Special Health Care Needs supports the Maternal and Child Health Bureau to meet its Children with Special Health Care Needs National Agenda performance outcome that "all families of CSHCN will have adequate private and/or public insurance to pay for the services they need."

Internet Resources for Special Children (IRSC)/Neurological – The IRSC Web site is dedicated to children with disabilities and other health-related disorders worldwide.

The National Center for Education in Maternal and Child Health/Office for Children with Special Health Care Needs – This Web site contains a selection of current, high-quality resources for primary care providers and families regarding children with special health-care needs.

The National Policy Center for Children with Special Health Care Needs – The National Policy Center for Children With Special Health Care Needs, established through a cooperative agreement with the Maternal and Child Health Bureau, HRSA, and DHHS, promotes comprehensive, family-centered systems of care for children with special health care needs and their families.

Programs for Children with Special Health Care Needs – The Children with Special Health Care Needs Program promotes the optimal health and development of Virginia's children with special health care needs by working in partnership with families, service providers and communities.

Tourette Syndrome Association of Greater Washington – The Tourette Syndrome Association of Greater Washington is dedicated to serving the needs of families and individuals living with Tourette Syndrome, as well as the professionals who serve them, in Maryland, Virginia, West Virginia and Washington, D.C.

Yale Center for Children with Special Health Care Needs – At Yale, the resources of this effort are combined with the Disabled Child Care Program. The new clinical consultation service assists primary care providers, and trains pediatric residents and other health professionals in the care of children with chronic illness and disabilities. It also provides families with an opportunity to review their child's needs on a broad continuum of health. The scope of assessments at the Disabled Child Care Clinic extend beyond diagnosis to long-term expectations and planning, ensuring optimal access to all appropriate therapeutic interventions and supportive programs.

Cased-based materials

CMI Outreach Project – A brief summary of each case story is provided to assist instructors in selecting case materials that address specific content areas and teaching objectives. Each story is accompanied by related discussion questions that may be used by students to prepare for case discussion or by instructors to facilitate group discussion.

Case-based Instruction – This page contains a number of links to Web resources on case-based instruction. Some links to problem-based learning are also included.

Caselink Project – Caselinks is a University of California at Santa Barbara project led by a team of education professionals and researchers collaborating with professionals from other teacher education institutions and local school districts. They are creating Web-served, interactive, multimedia materials for initial and ongoing professional development of K-12 teachers and related human services personnel.

Clearinghouse for Special Education Teaching Cases – This federal, special project is designed to develop, evaluate (field test) and nationally disseminate teaching cases that will aid in the attainment of knowledge (by preservice and inservice teachers) around the knowledge areas/competencies that the Council for Exceptional Children (CEC) has identified as necessary for teachers who work with children and youth with disabilities and their families.

Circle of Inclusion – The Circle of Inclusion Web site is for early childhood service providers and families of young children. This Web site offers demonstrations of and information about the effective practices of inclusive educational programs for children from birth through age 8.

Facets – This is a collaborative outreach program for young children with disabilities in the field of early intervention (ages birth through 3 years). This joint project, funded by the U.S. Department of Education, between the University of Kansas and Florida State University, provides training for family-guided, activity-based intervention strategies.

University of Kansas – Designed to help bridge the gap between theory and practice in special education teacher education, this site provides Web-based cases, technology integration, faculty integration, K-12 infusion, online courses and more.

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