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Severe Mental Retardation

American Association on Mental Retardation – The Association has prepared an online resource that will augment its activities and provide rapid access to information about the mental retardation and disabilities field.

The Arc of the United States – This online resource has been developed to provide easy access to facts, contacts and news updates about Arc's constituents and advocacy.

The Arc of Virginia – The Arc of Virginia is a statewide advocacy organization composed of individuals with disabilities, families and professionals who care about people who have mental retardation and related developmental disabilities.

Down Syndrome – The Down Syndrome Web Site was established in February of 1995 and is compiled from the contributions of members of the Down Syndrome Listserv and others.

FRAXA – FRAXA was founded in 1994 by three parents of children with fragile X syndrome, to support scientific research aimed at finding a treatment and a cure for fragile X syndrome. Fragile X research is drastically underfunded, considering its high prevalence, prospects for a cure, and the promise that this research holds for advancing understanding of other disorders like autism, Alzheimer's disease and X-linked mental retardation.

The Joseph P. Kennedy Jr. Foundation – The mission of the Joseph P. Kennedy Jr. Foundation is to provide leadership in the field of mental retardation and service to persons with mental retardation, both those born and unborn, and their families.

IRSC (Internet Resource for Special Children) – The IRSC Web site is dedicated to children with disabilities and other health-related disorders worldwide.

Little City Foundation – Helping children and adults with mental retardation and other developmental, emotional and/or behavioral challenges live meaningful and happy lives with dignity and respect.

Murdoch Center Foundation – The Murdoch Center Foundation is a nonprofit corporation dedicated to education, training, research, information dissemination and professional development in the field of mental retardation. The foundation publishes a variety of curriculum guides and assessment tools for use with persons with developmental disabilities.

Our-Kids – The Our-Kids Web site supports the Our-Kids e-mail list. Our-Kids is a "family" of parents, caregivers and others who are working with children with physical and/or mental disabilities and delays.

President's Committe on Mental Retardation – The President's Committee on Mental Retardation is a federal advisory committee, established by presidential executive order to advise the President of the United States and the Secretary of Health and Human Services on issues concerning citizens with mental retardation; coordinate activities between different federal agencies; and assess the impact of their policies upon the lives of citizens with mental retardation and their families.

Save Babies Through Screening – The mission of Save Babies Through Screening is to improve the lives of babies by working to prevent disabilities and death resulting from disorders detectable through newborn screening. We are a national nonprofit advocacy organization which is currently run solely by volunteers.

State Mental Health Agency & Mental Retardation Program – The mission of the Department of Mental Health, Mental Retardation and Substance Abuse Services is to improve the quality of life for people with mental disabilities and substance abuse problems by providing the very best services possible, at minimal burden to the taxpayer. The department works to effectively treat those who need services and to prevent the development of mental disabilities and substance abuse problems. This is accomplished through a coordinated system of care that respects and promotes the dignity, rights and full participation of individuals and their families.

University of Virginia: Office of Special Education/Mental Retardation – This University of Virginia site defines mental retardation and lists relevant links.

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