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Knowledge to Practice: Engaging Health Professionals and Families in Evidence-Based Research
Overview:
Children with special needs and their families want to benefit from therapies, treatments, and educational strategies. The Maternal and Child Health (MCH) workforce wants to insure that such strategies are safe, effective, ethically sound, and grounded in research evidence. Understanding of and participation in pediatric clinical trials/research is a challenge for clinicians and families. The purpose of this Knowledge to Practice project is two fold: 1) to enhance the leadership skills of MCH professionals and trainees by facilitating the transfer of knowledge and information related to MCH through web-based training, and 2) to engage family members of children with autism and genetic disorders to understand and consider participation in research related to MCH through an educational video/CD. This project will be coordinated through the Va-LEND Program, Partnership for People with Disabilities in collaboration with Virginia Title V, the LEND network, and community partners. It is a three-year grant funded by the Maternal and Child Health Bureau, Health Resources and Services Administration (Project # T21 MC08050).
Major Activities:
Two products will be developed, field tested, modified and disseminated nationally through MCH training programs and professional networks. The products include:
- a web-based training module for health professionals and trainees
- a video/CD for parents and family members
Contact: Janet Willis at (804) 828-0073, jwillis@vcu.edu
Janet H. Willis, MPH, RD
Assistant Director
Virginia LEND Program
1000 East Marshall Street, VMI Building, Room 320
P.O. Box 980405
Richmond, VA 23298-0405
Phone: 804-828-0073
Fax: 804-828-0098
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