Types of Disabilities

Children and Adults with ADD (CHADD) - Provide education, advocacy and support for individuals with AD/HD.  1-800-233-4050,  www.chadd.org

Angelman Syndrome
Angelman Syndrome Foundation - Advances the awareness and treatment of Angelman Syndrome through education and information, research, andsupport for individuals, their families and other concerned parties.
1-630-978-4245,  www.angleman.org         

Angelman Forum -Provides a free public area for the Angelman Syndrome community to share information about anything related to Angelman Syndrome. You are welcome to share stories about your AS child or AS family experiences.  www.angelmanforum.org

Autism Center Registry of VA - Is a listing of Virginia families and individuals interested in knowing when researchers are recruiting participants for a study. Collin Pottie, 1-866-628-2268 ext. 315.

VA Autism Resource Center - Helps people deal with autism or the symptoms associated with that disorder. They provide training, individual case consultation, materials and information to families and professionals.
Carol Schall, 1-877-667-7771, www.varc.org

Autism Society of America-Central VA - Our local chapter provides a monthly newsletter to over 600 professionals, families and interested individuals as well as monthly meetings, a lending library, support and educational information for families or anyone interested in autism spectrum disorder.  Bradford Hulcher, 804-257-0192,  www.asacv.org

Commonwealth Autism Services – Provide information and referral, training and much more.  John Toscano, 1-800-649-8481, www.autismva.org

Blind /Visually Impaired
VA Dept. for the Blind and Visual Impaired - Empower blind, visually impaired, and deafblind individuals to achieve their maximum level of employment, education, and personal independence.  1-800-622-2155,

American Foundation for the Blind -  1-800-232-5463,  www.afb.org

National Federation of the Blind - 1-410-659-9314, www.nfb.org

VA Dept. of Education – Debbie Pfeiffer – specialist for students who are blind or visually impaired. Debbie.Pfeiffer@doe.virginia.gov 

Brain Injury
Brain Injury Association of VA – Can train persons with brain injury, family members, and professionals how to advocate for their needs through their Advocacy Academy training sessions which focus on how to self advocate with insurance companies, doctors, and school systems.  Anne McDonnell, 1-800-334-8443,  www.biav.net

Partnership for People with Disabilities – Positive Behavioral Supports.  Can provide training and list of facilitators.  Molly Delinger-Wray,  804-828-6926,  www.vcu.edu/partnership/pbs

Cerebral Palsy
United Cerebral Palsy - The leading source of information on cerebral palsy.  1-800-872-5827,  www.ucp.org

Care Connections for Children - Care coordinators  who can work closely with children and their families to provide targeted, comprehensive and culturally appropriate care.  1-804-864-7706,  www.vahealth.org/specialchildren/cccprogram.asp

Deaf or Hard of Hearing
VA Dept. for the Deaf and Hard of Hearing – 1-800-552-7917,  www.vddhh.org

Guide by Yourside - A parent to parent initiative in Virginia that supports families with children who are deaf or hard of hearing. Regina Craig 1-866-596-9367 www.vcu.edu/partnership/gbys

Hands and Voices -  A parent-driven, parent/professional collaborative group that is unbiased towards communication modes and methods.  Tiffany Johnson, 804-723-5433, www.handsandvoices.org

VA Hearing Aid Loaner Bank - Open to children under age 18 whose hearing loss is confirmed by an audiologist.  The bank lends hearing aids and FM systems for up to six months. Lisa Powley, 1-866-596-9367, 

Technical Assistance Center for Children who are Deaf or Hard of Hearing – Information and technical assistance for children in the school system who are deaf or hard of hearing.  Ann Hughes, 804-828-1342,   awhughes@vcu.edu

VA Dept. of Education – Debbie Pfeiffer – specialist for students who are deaf or hard of hearing.  804-371-4059

Down Syndrome
The Arc of VA -  Is affiliated with The Arc of the United States and is the state chapter in Virginia we help people with disabilities, family members, friends, and others become advocates themselves.  Jamie Trosclair, 800-649-8481,  www.arcofva.org

Down Syndrome Association of Greater Richmond – Organization run by parents, provides supports and resources.  804-796-5141, www.dsagr.com

Dual Sensory Impairment
Virginia Project for Children and Young Adults with Deaf-Blindness  -    Provides distance and on–site technical assistance, training, distance education and networking information to families, educators and service providers for young people with both visual and hearing loss.  Julie Durando, 804-828-8252,  www.twc-deafblind.state.va.us

Intellectual Disabilities
The ARC of Virginia - A statewide advocacy organization with 21 chapters working to create A Life Like Yours for people who have intellectual and related developmental disabilities.  .  Jamie Tosclair, 804-649-8481, www.arcofva.org

Rare Genetic Disorders
Unique - A source of information and support to families and individuals affected by any rare chromosome disorder and to the professionals who work with them. Unique is a UK-based charity but welcomes members worldwide. Membership of Unique is free.  www.rarechromo.org

Chromosome Deletion Outreach – A non-profit organization, founded, supported, and run by parents. Our children are affected by a wide range of chromosome disorders, including deletions, duplications, trisomies, inversions, translocations, and rings. FamilyHelpline (561) 395-4252,  www.chromodisorder.org

Genetic and Rare Conditions Site –Information on advocacy and support groups, information on genetic conditions /birth defects for professionals, educators, and individuals.   www.kumc.edu/gec/support

Spina Bifida
Spina Bifida Association – A great resource that provides high quality, confidential information and referral services with chapters in every state.  www.spinabifidaassocation.org

Spina Bifida Association of VA – Virginia’s chapter.  SBA of the Roanoke Valley.   Hallie Stanley, 1-540-725-2096, www.sbarv.org

Tourette Syndrome  
National Tourette Syndrome Association -  Offers resources and referrals to help people and their families cope with the problems that occur with TS.  Membership includes individuals, families, relatives, and medical and allied professionals working in the field. www.tsa-usa.org       

Tourette Syndrome Association of  Greater Washington -  Website with information for Washington DC, Virginia and Maryland.  www.tsagw.org